Monday and Tuesday were spent resting. Gunner experienced several fluctuations in his blood pressure and body temperature. The nurses were wonderful and quickly had medicine available to regulate his numbers. During this time Gunner was feeling pretty good. The girls read with him and played video games to pass the time. Junior and I had several meetings with his oncologist, his case worker, and a research specialist. After careful consideration, we have agreed to participate in a research study during Gunner’s first phase of treatment. Each time blood is drawn or bone marrow is extracted, an extra bit will be taken for cancer research. No extra sticks will be made and the amount is very insignificant resulting in no extra discomfort for Gunner. Junior and I feel strongly about participating to enable researchers to continue working towards the best possible treatment and cure for this horrible disease.
Day 4 was very stressful. Gunner would receive a new type of chemo named PEG-L-asparaginase. PEG has a high chance of causing significant side effects including anaphylaxis shock. I worried all day about the possibility of an allergic reaction. Prior to the chemo they gave Gunner, Benadryl and then began to give him Zofran for nausea through his port. Immediately, he been screaming in pain saying his head hurt. He was clutching his head and rocking back and forth. Despite 3 doses of morphine and Ativan, it took almost 30 minutes to make the pain go away. It was one of the hardest things I’ve ever had to endure as our baby screamed in pain and I was unable to “fix” it. Days later I can still hear his voice screaming in my head . Zofran was the only “new” drug he had. So his oncologist assumed he was one of the .04% who are allergic to Zofran which produces horrific headaches. We were very upset to learn this because Zofran is one drug with almost zero side effects and is so helpful with an upset belly. Later that afternoon they administered his PEG. He didn’t have an allergic reaction…thank goodness. He then proceeded to sleep for the next 19+ hours with only waking up to potty. All those meds plus the chemo made him so sleepy.
Friday, June 20th after 8 days in the hospital since his diagnosis. We were able to go home. The 100 mile ride from Austin, to our home just outside of Waco took forever. It reminded me of taking Gunner home from the hospital as a newborn. I was scared that something might happen and I wouldn’t know what to do for him. Gunner slept in bed with us because we were afraid to have him so far away.(Just a few feet away in his own room) The next morning when he woke up, Gunner looked so refreshed. His color was better and in typical Gunner fashion… he was all smiles. His spirit through everything since his diagnosis has been amazing. Our little guy is truly a fighter.
If you feel lead to help with Gunner’s medical and travel expenses click here to donate to the #TeamGunner GoFundMe page.nofollow We appreciate your love, prayers, and support as Gunner battles to kick leukemia’s butt!